We are most grateful for your support of the Cure Tay-Sachs Foundation (CTSF). In 2007 the foundation was able to raise $332,071 in 2008 we raised $392,146 and in 2009 we raised $445,577 for Tay-Sachs disease research. Since June 2007 the CTSF has collected $1,169,794 from generous donors like you and we have issued $325,000 in grants to the Tay-Sachs Gene Therapy Consortium. We have issued over $208,000 in research grants in 2010 and are raising money to support the approaching clinical trials. We anticipate needed nearly $1.6 million to support toxicity studies, vector manufacturing, consulting fees and natural history studies required to meet FDA requirements for clinical trials.

For perhaps the first time in history Tay-Sachs and Allied Disease families have hope of a CURE. The research community has the tools to and foundations like ours are providing funding in magnitudes once believed impossible. We feel the obligation to keep our donors up to date on our research progress (see Quarterly Research Updates) and we are equally responsible to protect our donors contact information. The CTSF does not sell or in any way share our donors email addresses.

We work hard to protect our donor's money by spending it wisely. We keep administrative expenses as low as possible (less then 5%) and the foundation has NO paid employees. A listing of the research we support can be found on the Research section of this website. Thank you so much for supporting us - we will find a CURE for Tay-Sachs disease with your help!!.

This one of a kind Iceberg Award will be given to donors who contribute $1,000 or more in 2009. The stylish award is emblazened with the Cure Tay-Sachs Foundation logo and commemorates forever the year of your most generous donation!