2409 E. Luke Avenue Phoenix AZ 85016
(p) (562) 212-1071
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Our Site... Board of Directors Cheryl Babo

Cheryl Babo was born in Youngstown, Ohio, but has spent most of her adult life in Phoenix, Arizona. Cheryl and her husband, Keith, are the parents of two children — Ryan Anthony Babo, who was born on February 19, 2002, and Regan Audrey Babo, who was born on March 9, 2005.

Cheryl's son Ryan was diagnosed with juvenile onset Tay-Sachs disease in March 2005, at the age of 3 years old. Two months later, Ryan received a cord blood transplant at University Medical Center in Tucson, Arizona. Ryan died as a result of transplant complications four months later on August 30, 2005.

Cheryl attended Arizona State University, where she obtained her undergraduate degree (B.A., Philosophy 1990), law degree (J.D. 1993), and joint business administration and information management degrees (M.B.A./M.S.I.M. 2001). She spent the first part of her legal career as a commercial litigation attorney, focusing primarily in the area of complex civil actions.

After her son's diagnosis and death, Cheryl changed her career focus and now practices exclusively in the area of life sciences law. She currently is employed as Assistant Counsel for The Translational Genomics Research Institute (TGen) in Phoenix, Arizona and Of Counsel for Life Sciences Law, PLLC in Chapel Hill, North Carolina.

Nicole Luce

Married to Dave Luce with one child ￿ Riley (aka Princess Riley Bear) and they live in Coldwater, MI. Riley was born September 27, 2002 and was diagnosed with Sandhoff Disease, she passed away November 4, 2008.

Nicole, her family and friends have put on several fund raising events ￿ most notably the Annual Princess Riley Bear Golf Outing which has been held 7 years in a row. To date her events have raised $107,085 donated to the CTSF!!

Nicole has been the Office Manager/Financial Assistant at Morrison Financial Group for the past 21 years and has been on the Community Health Center Foundation Annual Support Committee since 2010.

Dave Rabinowitz

Dave and his wife, Julie Rabinowitz, from River Edge, New Jersey are the proud parents of four children, Jake, Emma, Zack, and Will. Our daughter, Emma, who was born on May 17th 2004, was diagnosed with Infantile Tay-Sachs at the age of 8 months in January 2005. Emma passed away after a long courageous battle, 3 months shy of her 7th birthday. Since 2008, Dave and Julie have organized fundraising and awareness events with the River Edge School system, Paramus Jewish Community Center, and the local business community. These events, which have been held annually, have raised over $34,000, all of which has been donated to the Cure Tay-Sachs Foundation.

Dave received a BS/International Relations from Syracuse University in 1993 and a MS/ Information Systems from Pace University in 1997. Since graduating, Dave has held various technology and management positions at Coopers & Lybrand, Prudential Securities, Prudential Financial, and Citigroup. He is currently employed as a Project Manager at ADP.

Rick Karl - President

Rick Karl (right) is one of two proud fathers of Krystie Anna Karl-Steiger. Krystie was born on January 26th, 2006 (and was a great birthday gift for her Dad who shares that same date). Krystie was diagnosed with Tay Sachs disease just before her first birthday.

Rick and family are currently living in Minneapolis, where Krystie has received a cord blood stem cell transplant in hopes of halting the disease. They hope to return to their home in California sometime in December, 2007. Krystie is doing relatively well, and is in the midst of some very significant post-transplant rehabilitative therapy.

Rick is an IT sales consultant with the Teradata division of the NCR Corporation, and has spent most of his career in manufacturing management. He works with Fortune 500 firms to help them understand and manage the large amount of data that resides throughout any large organization.

More information on the Karl-Steiger family and on Krystie is available at www.caringbridge.org/visit/krystie

Nichole Markowich

Nichole Markowich was married to husband Craig in May of 2000. She has two daughters Brianne (January 1995) and Alexis (March 2001). Alexis was diagnosised with Juvenile onset Tay-Sachs in August of 2005. Lexi had a cord blood transplant at Duke University Medical Center in December of 2005. Losing her battle to an infection in her blood in September of 2006.

Nichole has an Associates Degree in Business Management and is currently attending school again pursuing a degree in nursing. After caring for her daughter, she now has a passion to help others. She is dedicated to finding a cure to prevent future loss to other families.

Scott Metzger

Scott began his career with Bank of America in 1981 and worked on mergers and acquisitions before joining Prudential Securities, a predecessor firm of Wells Fargo Advisors in 1992. Originally from Ohio, Scott has lived in the Fort Myers area since 1980. He earned his banking degree from the University of Florida in 1987. Scott was promoted to Senior Vice President - Investment Officer in 2005. In 2007 Scott became Board Certified in Estate Planning. Scott is very involved in his local community and charitable activities. He is a member of the Bishop Verot Catholic High School Board and is on the Board of Directors of the Cure Tay-Sachs Foundation. Scott currently lives in Fort Myers area with his wife of 25 years Diana, and their three daughters Jordyn, Taylor and Madison.

Sue Mitchell

Sue (Bihn) Mitchell was born and raised in the Cleveland area with brothers Ken and Tim. She currently lives in Dublin, OH with her husband Robb Mitchell and her sons Corey and Colin. Sue is a graduate of Magnificat High School and Bowling Green State University. After graduation, she moved from Cleveland to Columbus and started working as a computer programmer for the Ohio Bureau of Workers￿ Compensation. She is still currently employed by BWC, and enjoys her position as a part-time Systems Analyst. Sue enjoys spending time with her family and loves to watch the boys participate in their sporting events. Sue enjoys walking, golfing, and riding her bike. She has participated in many organized fund-raising walking and riding events over the years. Sue enjoys watching the Indians and the Browns, while her husband enjoys the Reds and the Bengals, but the whole family agrees on the Ohio State Buckeye￿s. Sue has loved the honor of being the Godmother to Bailey, Dakota and Maeve Bihn.

Laurie ten Berge

Bio still to come

Mike Weisbarth

Mike was born in Cleveland and is one of six children. He became a fourth, live-in child in the Bihn home when they moved into the same North Olmsted neighborhood. Mike attended grade school with Ken then went on to a competing high school and college, but always remained a close friend to Ken and the Bihn family. After graduating in 1986 from BGSU in Ohio with a degree in accounting, Mike joined Touche Ross, a public accounting firm. Since 1994, Mike has served in various accounting and finance capacities with Cole National Corp., OfficeMax Inc., LESCO, Inc. and currently as Controller with Edgepark Medical Supplies.

Eventually, Mike and Ken placed their competitive edge aside and exchanged roles as the best man in each other￿s wedding. Mike married his wife Kathy in 1988. They have three daughters; Jamie ￿ 17, Madison ￿ 14 and McKenna ￿ 12. Mike and Kathy spend a lot of time traveling with their girls￿ athletic events and coordinating team activities. Mike is an active manager and player of a men￿s hockey team and the Treasurer of the Brecksville/Broadview Heights High School Boosters. Mike plays softball and enjoys fishing and golfing.


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The Cure Tay-Sachs Foundation is a 501(c)(3) tax exempt foundation
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