Media Coverage
This page will include links, video or actual copy of media coverage about the Cure Tay-Sachs Foundation or Tay-Sachs children. We will include links to the newest media items and older items for your review.
The Media is a tool we must utilize to spread our message. Without awareness we cannot raise the necessary funds needed to bring a CURE for Tay-Sachs to reality.
Boston College Chronicle - BC Researchers Aid Effort to End Tay-Sachs Disease
Article dated February 14, 2008
The article discuss the Tay-Sachs Gene Therapy Consortiums plan to study the use of Gene Therapy in treating Tay-Sachs disease. The Cure Tay-Sachs Foundation is mentioned in the article.
To read the article click here
WCCO Channel 4 in Minnesota - 2 Baby Girls Struggle With Rare Genetic Disease
Segments aired January 7, 2008
Minnesota News covering the story of two little girls (Krystie Karl-Steiger and Cedie Filsmyer) with Tay-Sachs disease currently in the University of Minnesota Hospital and how their struggles with the fatal disease may have very different outcomes.
To view the segment click here.
That's Life with Robin Swaboda
Segments aired January 4, 2008
The local Cleveland morning show named That's Life hosted by Robin Swaboda on Fox 8 did a segment on the Cure Tay-Sachs Foundation and Dakota Bihn. The show taped a segment with Dakota and Julie at school and then had Julie, Bailey, Heidi Penn, and her daughter Mikaela live in studio.
To view the segment click here.
Los Angeles Times - A donor egg gives life - and a death sentence
Article dated December 8, 2007
A story about egg donations, surrogates, and the problems with genetic testing in the egg donor industry. Rick Karl and Bruce Steiger fathered Krystie Karl-Steiger using an egg donor and a surrogate. Today Krystie suffers from Tay-Sachs disease.
To read the full article click here.
KSTP 5 Eyewitness News - Groundbreaking "U" procedure fights Tay-Sachs disease
Report Aired December 7, 2007
A story about Krystie Karl-Steiger's cord blood transplant at the University of Minnesota.
To view the segment click here.
The Minnesota Daily - 22-month-old girl treated at U for rare disease
Article dated December 6, 2007
A story about Krystie Karl-Steiger. Krystie is 22 months old and under going a cord blood transplant at the University of Minnesota.
To read the full article click here.
The News Sun - A smile that lights the dark
Article dated November 24, 2007
A Thanksgiving Day article about Dakota Bihn and the Cure Tay-Sachs Foundations fundraising efforts.
To read the full article click here.
Fox News - Americas News Room
Report aired November 21, 2007
Dakota Bihn and her family appear on the national cable news channel to discuss Tay-Sachs disease and our fund raising efforts.
To view the appearence click here.
KFVS 12 Heartland News - Caught on Tape - Thieves steal from auction to benefit dying children
Article dated May 31, 2007
Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.
To read the full article click here.
The Southern.com - Tape shows men stealing from charity auction
Article dated May 25, 2007
Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.
To read the full article click here.
The Time Tribune.com - Living on a prayer
Article dated April 28, 2007
An article about the community support for Molly Grace Jordan.
To read the full article click here.
The Cleveland Plain Dealer - At What Cost?
Articles dated November 5, 2006 though November 8, 2006
This four day feature includes articles, slide shows, and interactive features. It presents a negative view of the cord blood transplants journey of Dakota Bihn, Alexis Markowich, and Jashaia Small.
To read the full article click here.
The Time Tribune.com - A fairy tale birthday
Article dated September 29, 2006
An article about Molly Grace Jordan's third birthday party.
To read the full article click here.
The Capital Gazette - Parents dedicated to raising awareness about Tay-Sachs disease
Article dated August 6, 2006
The Hopf family spreads Tay-Sachs Awarness as their own son Conner fights the terminal disease.
To read the full article click here.
Channel 4 WNBC.com - Know The Facts About Tay Sachs Disease
Article dated July 6, 2006
An article about how John and Laurie ten Berge spread Tay-Sachs Awareness as they care for their daughter Elise ten Berge who suffers from Tay-Sachs disease.
To read the full article click here.
KFVS 12 Heartland News - Family Celebrates Daughter's Life Through Tough Times
Article dated May 22, 2006
An article about how Tim and Kerri Rochman celebrate their beautiful daughter Elise's life as she battles against terminal Tay-Sachs disease.
To read the full article click here.
The Times Tribune.com - All for Molly
Article dated May 8, 2006
An article about Mark Jordan's tattoo to honor his child Molly Grace Jordan
To read the full article click here.
The Catholic Review - Cuddling Conner -- Family faces fatal disease; questions, embraces God
Article dated March 15, 2006
The story of the Hopf family and their son Conner who suffers from Tay-Sachs disease.
To read the full article click here.
Baltimore Sun - Wearing his feelings on his wrist
Article dated January 25, 2006
Maryland Governor Robert Ehrlich wears a bracelet given to him by Carl and Desiree Hopf representing Conner's Way
To read the full article click here.
The Atlanta Jewish Times Online - Shocked by Tay-Sachs, an Atlanta family embraces every day with their daughter
Article dated October 14, 2005
An article about Eric and Nicole Fier and how they celebrate the life of their beautiful daughter Rachaeli as she battles Tay-Sachs disease. They choose to celebrate her life instead of anticipating her passing.
To read the full article click here.
New Jersey Herald - Ride to Remember; Fundraising trip brings in $50,000 for families of sick children
Article dated June 16, 2005
An article about a fund raiser for two year old Elise ten Berge who is suffering from Tay-Sachs disease
To read the full article click here.
The Record (Bergen)- Tay-Sachs disease startles, devastates non-Jewish parents
Article dated January 24, 2005
An article about John and Laurie ten Berge and how their daughter Elise has Tay-Sachs disease even thought they are not Jewish. Tay-Sachs was thought to be a Jewish disease - but six to twelve babies are born each year to none Jewish couples.
To read the full article click here.
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