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Our Site... Media Coverage

This page will include links, video or actual copy of media coverage about the Cure Tay-Sachs Foundation or Tay-Sachs children. We will include links to the newest media items and older items for your review.

The Media is a tool we must utilize to spread our message. Without awareness we cannot raise the necessary funds needed to bring a CURE for Tay-Sachs to reality.

Dailey Local News - Downingtown, PA - Family raises funds for Tay-Sachs research

Article dated January 12, 2013

One family is hoping to raise funds for not only awareness, but also a possible cure. Nathan Harney, 2, who was diagnosed with Tay-Sachs Disease when he was 14 months old.....

To read the article click here.

Township Journal - Reaching for the Cure in Elise's name

Article dated September 29, 2010

“If love was the cure, Elise would live forever.” So wrote John and Laurie ten Berge in a 2007 Cure Tay-Sachs Foundation newsletter. Sadly, their daughter Elise Catherine, born Feb. 5, 2003, lost her battle with Tay-Sachs disease (TSD) in January of this year.

To read the article click here.

The Herald Sun - Mother Fighting for Cure for Tay-Sachs

Article dated March 16, 2010

Cheryl Babo's quest to find a cure for the disease that took her son Ryan. Cheryl's quest leads her to chair the research initiave program at the NTSAD and help create the Cure Tay-Sachs Foundation to fund that research.

To read the article click here.

The Cleveland Jewish News - Chasing a Cure for Tay-Sachs

Article dated March 19, 2010

Article discuss Dakota Bihn's diagnosis of Tay-Sachs disease and the creation of the Cure Tay-Sachs disease. Additonally it tell the stort of LOTS sufferer David Schonberg.

To read the article click here.

The Jewish Daily Forward - Daughter Inspires Dad’s Quest for Cure

Article dated August 20, 2009

Dakota Bihn's diagnosis of Tay-Sachs disease drives her father to start the Cure Tay-Sachs Foundation.

To read the article click here.

The Jewish Dailey Forward - Living With LOTS, S.F. Woman Won’t Let Disease Win

Article dated August 20, 2009

Conventional wisdom dictates that runners, like most athletes, improve with experience. A promising freshman cross-country runner might become the school track star by senior year. But that didn’t happen for Vera Pesotchinsky.

To read the article click here.

The Southern.com - Hundreds Hit Blue Sky for Tay-Sachs Benefit

Article dated June 27, 2009

The 4th Annual Elise Rochman Benefit Concert drew hundreds of supporters and several Tay-Sachs families for an afternoon of music, auctions and fundraising for Tay-Sachs research and support. Tim and Kerri Rochman put on the event to honor thier daugher Elise who has Tay-Sachs disease.

To read the article click here.

San Fransiscos Jewish Daily.com - Daughter’s death from Tay-Sachs sends dad on a mission

Article dated June 4, 2009

Before their daughter’s death in December 2006, Jay and Nikki Arbogast made a promise to thier daughter Payton; they would continue working until a cure for Tay-Sachs is found.

To read the article click here.

Moment Magazine

March / April Edition

The Cure Tay-Sachs Foundation was asked to place and add in the March / April issue of Moment Magazine. A magazine focused on Jewish issues, including Genetic Disease in the March / April issue.

See the ad click here.

Centre Daily Local Newspaper - Friends’ Big Ten rivalry means more than wins, losses

Article dated October 19, 2008

Penn State fans take up cause of thier Ohio State friends and tailgate to raise money for Dakota and Tay-Sachs disease research.

To read the article click here.

Bergen Record - Act of charity unites victims of different diseases

Article dated July 20, 2008

Two Tay-Sachs children donate hair to Locks of Love. Emma Rabinowitz and Elise ten Berge (and Elise's sister Caroline) donated their beautiful long hair to make wigs for other sick children.

To read the article click here.

Jewish Review - Senate Designates September to raise Awareness of Tay-Sachs

Article dated July 7, 2008

The Davis family from Portland Oregon takes about the importance of Tay-Sachs Awareness and Family Support!! Thier son Adam died of Tay-Sachs disease in 2001 and they have remained active in fighting Tay-Sachs disease.

To read the article click here.

Boston College Chronicle - BC Researchers Aid Effort to End Tay-Sachs Disease

Article dated February 14, 2008

The article discuss the Tay-Sachs Gene Therapy Consortiums plan to study the use of Gene Therapy in treating Tay-Sachs disease. The Cure Tay-Sachs Foundation is mentioned in the article.

To read the article click here

WCCO Channel 4 in Minnesota - 2 Baby Girls Struggle With Rare Genetic Disease

Segments aired January 7, 2008

Minnesota News covering the story of two little girls (Krystie Karl-Steiger and Cedie Filsmyer) with Tay-Sachs disease currently in the University of Minnesota Hospital and how their struggles with the fatal disease may have very different outcomes.

To view the segment click here.

That's Life with Robin Swaboda

Segments aired January 4, 2008

The local Cleveland morning show named That's Life hosted by Robin Swaboda on Fox 8 did a segment on the Cure Tay-Sachs Foundation and Dakota Bihn. The show taped a segment with Dakota and Julie at school and then had Julie, Bailey, Heidi Penn, and her daughter Mikaela live in studio.

To view the segment click here.

Los Angeles Times - A donor egg gives life - and a death sentence

Article dated December 8, 2007

A story about egg donations, surrogates, and the problems with genetic testing in the egg donor industry. Rick Karl and Bruce Steiger fathered Krystie Karl-Steiger using an egg donor and a surrogate. Today Krystie suffers from Tay-Sachs disease.

To read the full article click here.

KSTP 5 Eyewitness News - Groundbreaking "U" procedure fights Tay-Sachs disease

Report Aired December 7, 2007

A story about Krystie Karl-Steiger's cord blood transplant at the University of Minnesota.

To view the segment click here.

The Minnesota Daily - 22-month-old girl treated at U for rare disease

Article dated December 6, 2007

A story about Krystie Karl-Steiger. Krystie is 22 months old and under going a cord blood transplant at the University of Minnesota.

To read the full article click here.

The News Sun - A smile that lights the dark

Article dated November 24, 2007

A Thanksgiving Day article about Dakota Bihn and the Cure Tay-Sachs Foundations fundraising efforts.

To read the full article click here.

Fox News - Americas News Room

Report aired November 21, 2007

Dakota Bihn and her family appear on the national cable news channel to discuss Tay-Sachs disease and our fund raising efforts.

To view the appearence click here.

KFVS 12 Heartland News - Caught on Tape - Thieves steal from auction to benefit dying children

Article dated May 31, 2007

Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.

To read the full article click here.

The Southern.com - Tape shows men stealing from charity auction

Article dated May 25, 2007

Two thieves are caught on tape stealing from a fundraiser designed to support Elise Rochman's battle against Tay-Sachs disease.

To read the full article click here.

The Time Tribune.com - Living on a prayer

Article dated April 28, 2007

An article about the community support for Molly Grace Jordan.

To read the full article click here.

The Cleveland Plain Dealer - At What Cost?

Articles dated November 5, 2006 though November 8, 2006

This four day feature includes articles, slide shows, and interactive features. It presents a negative view of the cord blood transplants journey of Dakota Bihn, Alexis Markowich, and Jashaia Small.

To read the full article click here.

The Time Tribune.com - A fairy tale birthday

Article dated September 29, 2006

An article about Molly Grace Jordan's third birthday party.

To read the full article click here.

The Capital Gazette - Parents dedicated to raising awareness about Tay-Sachs disease

Article dated August 6, 2006

The Hopf family spreads Tay-Sachs Awarness as their own son Conner fights the terminal disease.

To read the full article click here.

Channel 4 WNBC.com - Know The Facts About Tay Sachs Disease

Article dated July 6, 2006

An article about how John and Laurie ten Berge spread Tay-Sachs Awareness as they care for their daughter Elise ten Berge who suffers from Tay-Sachs disease.

To read the full article click here.

KFVS 12 Heartland News - Family Celebrates Daughter's Life Through Tough Times

Article dated May 22, 2006

An article about how Tim and Kerri Rochman celebrate their beautiful daughter Elise's life as she battles against terminal Tay-Sachs disease.

To read the full article click here.

The Times Tribune.com - All for Molly

Article dated May 8, 2006

An article about Mark Jordan's tattoo to honor his child Molly Grace Jordan

To read the full article click here.

The Catholic Review - Cuddling Conner -- Family faces fatal disease; questions, embraces God

Article dated March 15, 2006

The story of the Hopf family and their son Conner who suffers from Tay-Sachs disease.

To read the full article click here.

Baltimore Sun - Wearing his feelings on his wrist

Article dated January 25, 2006

Maryland Governor Robert Ehrlich wears a bracelet given to him by Carl and Desiree Hopf representing Conner's Way

To read the full article click here.

The Atlanta Jewish Times Online - Shocked by Tay-Sachs, an Atlanta family embraces every day with their daughter

Article dated October 14, 2005

An article about Eric and Nicole Fier and how they celebrate the life of their beautiful daughter Rachaeli as she battles Tay-Sachs disease. They choose to celebrate her life instead of anticipating her passing.

To read the full article click here.

New Jersey Herald - Ride to Remember; Fundraising trip brings in $50,000 for families of sick children

Article dated June 16, 2005

An article about a fund raiser for two year old Elise ten Berge who is suffering from Tay-Sachs disease

To read the full article click here.

The Record (Bergen)- Tay-Sachs disease startles, devastates non-Jewish parents

Article dated January 24, 2005

An article about John and Laurie ten Berge and how their daughter Elise has Tay-Sachs disease even thought they are not Jewish. Tay-Sachs was thought to be a Jewish disease - but six to twelve babies are born each year to none Jewish couples.

To read the full article click here.

 

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