12730 Triskett Rd. Cleveland, OH 44111
(p) (216) 812-5855
(f) (216) 251-6728
(e) email CTSF
Our Site... Fundraising Campaigns 3rd Annual Dakota's Dream

Saturday - September 19, 2009

The 3rd Annual Dakota's Dream campaign features kids going door to door collecting change to help fund Tay-Sachs research!! The first two years have raised over $75,000!!! The event include door to door collection in the morning followed by collection party featuring pizza, balloons, jugglers, and free t-shirts!! More details to follow!!

Charles Lee Benefit

September 2009

The 3rd Annual Charles Lee Benefit in memory of Charles Lee Anderson. Details to follow, please check back.

Riley Luce Benefit

Saturday - September 26, 2009

The 2nd Annual Riley Luce Benefit has officially been booked at the Prairie River Golf Club (Bronson, Michigan) for Saturday, September 26, 2009 at 2:00 p.m!! Stay tuned for more creative details!!!

2009 Tay-Sachs Charity Auction

Friday - October 23, 2009

The 2nd Annual Tay-Sachs Charity Auction will feature autographed items from Sports, Music, and Entertainment celebrities. The items will be displayed on our auction site www.ctsfauction.org and available for bid at our gala event. The date and time of the event is to be determined once the NFL schedule for 2009 has been released. The event is supported by Cleveland Browns left guard Eric Steinbach. Check back for a listing of items available for auction and other details.

View event brochure here: Page 1 or Page 2.

Trick or Treat for Tay-Sachs

Saturday - October 31, 2009

The 2nd Annual Trick or Treat for Tay-Sachs disease will be held following Halloween. Kids donate candy they collected on Halloween to an local food shelter and supporters pledge money to help find a cure for Tay-Sachs disease. Please check back for more details.

Tailgate for Tay-Sachs

Saturday - November 7th and November 14th, 2009

The 3rd Annual Tailgate for Tay-Sachs challenge between the friendly rival from Penn State and Ohio State. The Socie Family (Penn State) and the Mitchell Family (Ohio State) sponsor tailgate fundraising events around the playing of the Penn State / Ohio State Game. This years game is Saturday, November 7th in Happy Valley, PA and will kick of the 2009 event. The Ohio State fans will do thier tailgate party the following weeks end (November 14th) before the Ohio State / Iowa game. In 2007 the two events raised $5,000 for Tay-Sachs research. In 2008 the two families combined to raise $17,700!!

Hard Driver Band Benefit Concert

Friday - November 27, 2009

The Hard Driver Band will be holding it 10th Annual Benefit Concert - and for the second time the concert will benefit the Cure Tay-Sachs Foundation. The event will include awesome music, drinks, raffles, and side boards. More details to follow.

2009 Tay-Sachs Charity Golf Outing

Friday - December 4, 2009

The Strand Country Club is hosting the first ever Cure Tay-Sachs Foundation Charity Golf Outing in honor of Dakota Bihn. The event is 18 holes of golf preceded by lunch and followed by dinner and a silent auction. The event will begin at noon with a shot gun start at 1pm. Stay tuned for more details!

To see event brochure Page 1 or Page 2 to see event poster click here

Conner's Way Benefit

TBD

Conners Way will be holding its fourth annual benefit and silent auction in memory of Conner Hopf. Please check back for more details!!

2009 Fund Raising Campaign Results

The Cure Tay-Sachs Foundation will sponsored a number of fund raising events in 2009. The following is summary of the events that occured and how they fared. The Cure Tay-Sachs Foundation is most grateful for the many volunteers that made the fundraising possible and the countless organizations that supported our efforts. When the CURE for Tay-Sachs disease becomes a reality, you will all know you had a significant role in making that happen. Thank you and God Bless!

  • Peet's Coffee & Tea - December 31st - $2,025
  • Little Angels Charities / Paltalk Pal-A-Thon - February 13-15 - $4,453
  • Blue Moose Saloon Night Out - February 21st - $4,016
  • Strongsville High School Powder Puff Football - April 4th - $1,200
  • ROI Bucks for Ducks Dress Down Day - March 2009 - $1,393
  • Spring Fever (Silpada, Mary Kay & Pamper Chef)- April 7th - $714
  • Laughter, Comedy & Hope featuring Mike Armstrong - May 15th - $5,348
  • A Night Out For Emily - May 30th - $11,870
  • Drive FORE Dylan - June 19th - TBD
  • 4th Annual Elise Rochman Benefit at Blue Sky Vineyards - June 27th - TBD
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eBay & MissionFish

The Cure Tay-Sachs Foundation is a register charity with MissionFish. MissionFish is non-profit charity affiliated with eBay. The two organizations have teamed up to allow eBay sellers the chance to support their favorite charities. Every eBay seller has the opportunity to designate the Cure Tay-Sachs Foundation as a benefactor from their sale. The seller chooses our charity and then a percentage of the sale they wish to donate (must be at least $5).

The downside is MissionFish does take up to 20% to cover their costs as a 501(c)(3) non-profit (the percentage gets lower the higher the selling price). If an eBay seller is classified as a "Direct Seller" for the foundation, then MissionFish takes no fee.

The Cure Tay-Sachs Foundation has set up an eBay account so we can sell items on-line to benefit the foundation. If you are an eBay user and wish to help find a CURE — donate a portion of your sales to the Cure Tay-Sachs Foundation. If you have items you would like to sell to benefit the Cure Tay-Sachs Foundation — let us know and we can put them up for sale using the foundation's eBay account.

Contact us at questions@curetay-sachs.org if you need help or information can be found at www.MissionFish.org or www.eBay.com

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GoodSearch

GoodSearch is an internet search engine. The Cure Tay-Sachs Foundation has signed up as an eligible charity. If you select the Cure Tay-Sachs Foundation as your charity we get one cent for every search you do. Furthermore, if you buy items from an affiliated store, between 3-5% of that sale will be donated to the Cure Tay-Sachs Foundation. The service cost you nothing. Just select the Cure Tay-Sachs Foundation as your charity of choice and begin searching the internet and shopping just like you normally would.

Make GoodSearch your search engine of choice and support the Cure Tay-Sachs Foundation. You would be helping us find a CURE.

To begin earning us money, go to www.goodsearch.com.

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United Way

Did you know when you donate to United Way at work you could be having those donations earmarked for the Cure Tay-Sachs Foundation? When you sign up to make your donations, ask to make the Cure Tay-Sachs foundation the recipients of your donation. The requirements are that the charity is a 501(c)(3) approved organization — and we are!

You may be asked for the Cure Tay-Sachs Foundation EIN or Tax ID#, the foundations address, and some contact information. I have provided all that detail below. Ask your Human Resource Department and see if you can't help us find a CURE for Tay-Sachs disease!

Cure Tay-Sachs Foundation
12730 Triskett Road
Cleveland, OH 44111
www.CureTay-Sachs.org
EIN or Tax ID# 26-0256621
Phone (216) 812-5855
Fax (216) 251-6728
Contact: Kenneth Bihn, President
ken.bihn@curetay-sachs.org

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Donate By Check

Make Check payable to Cure Tay-Sachs Foundation and mail to the following address:

Cure Tay-Sachs Foundation
12730 Triskett Road
Cleveland, OH 44111

We will issue you a receipt for your tax records. The Cure Tay-Foundation is a tax exempt, non-profit, charity approved by the Internal Revenue Service as a 501(c)(3). For a copy of the IRS determination letter, click here.

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Donate Online

To make a secure donation with a credit card or through PayPal, click the PayPal Donation button.

You do NOT need a PayPal account to make a credit card donation. We will issue you a receipt for your tax records. The Cure Tay-Foundation is a tax exempt, non-profit, charity approved by the Internal Revenue Service as a 501(c)(3).

For a copy of the IRS determination letter, click here.

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2008 Fund Raising Campaign Results
  • Silpada, Pampered Chef, and Mary Kay - January 23 - $1,308
  • Radio Scooter International Radiothon - Feb 15 - 17, 2008 - $3,501
  • 12th Birthday of Colin Mitchell, Becca Plasky and Emily Rinehardt - $1,570
  • Jim Gill Benefit Concert at Friends West Park Church (March 17th) - $591
  • Rocky River Vendor Fair - April 19 - $240
  • Julie Bihn's 40th Birthday Celebration - April 26 - $5,166
  • Elise Rochman 3rd Annual Benefit Concert - May 3 - $38,332
  • Family Fun Fitness Fundraiser - May 31 - $1,365
  • Candy's Garage Sale in Australia - June 15 - $1,705
  • 2nd Annual Charles Lee Anderson Benefit - June 22 - $5,622
  • Defender of Dakota - Filterqueen - June 2008 - $10,250
  • Charles Lee Anderson Memorial - July 19 - $10,815
  • Yoni Fier Bar Mitzvah Celebration - August 2008 - $5,654
  • 2nd Annual Riley Luce Benefit Golf Outing - Augut 2 - $16,000
  • Michigan Bucks present Goal for Dakota - Augut 9 - $10,205
  • United Kingdom Walkathon - August 17th - $910
  • Willow Lake Park Lottery Wreath - August 23rd - $1,073
  • Equinox Salon Hair Cutting Promotion - August 21st to 24th - $1,524
  • Dream Campaign - September 13th - $27,182
  • Solano Stroll in CA - September 13th - $1,210
  • Tricia Rochman's 40th Birthday Celebration - September 20th - $1,871
  • Penn State/ Ohio State Tailgate Party for Tay-Sachs - October 18th & 25th - $17,739
  • Trick or Treat for Tay-Sachs - November 3rd - $5,455
  • Ultimate Sports Auction - November 8th - $62,478 (less $12,385 in expenses)!!
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2007 Fund Raising Campaign Results
  • CTSF Clam Bake (hosted by the Stevens family) - $600
  • Long Beach, CA Garage Sale - $853
  • Scrapbooking Fund Raiser - $140
  • Olmsted Community Center Activity Nights - $200
  • St. Anthony of Padua Parish Dress Down Day - $329
  • Frank Russo County Auditor Dress Down Fund - $1,000
  • Melanie Jaeckin's Class Bake Sale - $1,351
  • Conner's Way Benefit Dinner - $25,540
  • Ohio State / Penn State Tailgate Party for Tay-Sachs - October - $5,230
  • Wingapolooza / Hard Driver Band Benefit Concert - $21,685
  • Dakota's Dream Door to Door Collection - $47,518 (plus $10,000 in Corporate donations)
  • St. Mary's Bake Sale (organized by Natalie Castro) - $134
  • St. Thomas Episcopal Church Collection - $700
  • Episcopal Church of Advent Collection - $236
  • Molly Grace's Dream Door to Door Collection - $128
  • St. Brendan's Church Collection - $560
  • Olmsted Community Church Collection - $271
  • Charles Lee's Dream Door to Door Collection - $856
  • Polaris School Collection - $3,450
  • Amy Fontana Pumpkin Roll Sale - $750
  • North Royalton Middle School Wii Raffle - $2,026
  • Great Northern Mall Gift Wrapping - $748
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© 2007 Cure Tay-Sachs Foundation. All Rights Reserved.
The Cure Tay-Sachs Foundation is a 501(c)(3) tax exempt foundation
The CTSF is affiliated with the National Tay-Sachs and Allied Diseases Association (NTSAD)
Site-design by Ken Bihn. Developed by Michael Pusateri
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