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Cure Tay-Sachs Foundation
Donation for A CURE!!
Thank You for YOUR Support!!!! Tay-Sachs Awareness Video - see Dakota and her friends click here President Bush offers his greeting and appreciation for our efforts - see message Have you seen the CTSF Race Car or Softball Team or the CTSF RV? Or the CTSF Tire Cover? We have two billboards on Interstate 90 on the west side of Cleveland between West 117th and Warren Road (on the south side) the Ryan Babo and Conner Hopf billboards are currently up replacing the Dakota Bihn and Elise Rochman billboards. Artwork of Tay-Sachs Kids by Ralph Keefner CTSF $100,000 Grant Press Release Tay-Sachs families talk about the disease November 2006 was Tay-Sachs Awareness Month in Maryland November 2007 was Tay-Sachs Awareness Month in Ohio and December in Missouri March 2008 was Tay-Sachs Awareness Month in Florida; April 2008 was Tay-Sachs Awareness Month in California; May 2008 was Tay-Sachs Awareness Month in Illinois and Michigan; June 2008 was Tay-Sachs Awareness Month in Arizona; July 2008 was Tay-Sachs Awareness Month in New Jersey and New York; August was Tay-Sachs Awareness Month in North Carolina and Louisiana; September was NATIONAL Tay-Sachs Awareness Month in The United States Senate and House and Tay-Sachs Awareness Month in Kentucky , Oklahoma, Missouri, Wisconsin, Minnesota and a Presidential Message ;October 2008 was Tay-Sachs Awareness Month in Georgia and Maryland, and November was Tay-Sachs Awareness Month in Ohio; Oregon, Pennsylvania and Massachusetts!!! May 2009 is Sandhoff Awareness Month in Idaho 
Cooperation among five highly respected research institutions has created the Gene Therapy Consortium. Gene Therapy uses modified virus cells as vehicles to transport and duplicate Hex-A enzymes into the brain. The technology has shown great promise in animal models and the current research plan (if properly funded) targets clinical trials in the next three to five years. Learn more... Gene Therapy in the News: The Boston College Chronicle has an article in its February 14, 2008 Edition on Page 4 about the Tay-Sachs Gene Therapy Consortium. Visit the Tay-Sachs Gene Therapy Consortium website at www.tsgtconsortium.com. To see video of mice treated with gene therapy, click here. The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives. To begin the journey into Tay-Sachs Awareness, click here. Have you ever heard the expression "One in a million?" I am sure most everyone has. I'd like to try and explain what "one in a million" means to me. The chances I would have a child affected by Tay-Sachs disease seemed like "one in a million." I had never even heard of the disease before my child was diagnosed with it. Now we battle with the "one in a million" odds that we can find a cure in time to save my beautiful daughter. We all think the odds are so remote, we don't need to worry about the hundreds of rare disorders. When the odds catch up with you, everything changes. Let me try and put it into perspective for everyone... read more |
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