12730 Triskett Rd. Cleveland, OH 44111
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(e) email CTSF
Our Site... Useful Links
National Organizations

www.ntsad.org
This is the National Tay-Sachs and Allied Diseases Association website. The national organization has been around for over 50 years – it is the oldest such organization. Has great information on many lysosomal storage diseases (like Tay-Sachs).

Caring Bridge Sites of Tay-Sachs children

www.caringbridge.org/visit/dakotabihn
Dakota has Juvenile On-Set Tay-Sachs. She had a cord blood transplant at Duke Medical Center in January 2006.

www.caringbridge.org/visit/alexismarkowich
Lexi had Juvenile On-Set Tay-Sachs. She had a cord blood transplant at Duke Medical Center in December 2005 and received her angel wings in September 2006.

www.caringbridge.org/visit/jashaiasjourney
Jashaia had Juvenile On-Set Tay-Sachs.   She had a cord blood transplant at Duke Medical Center in January 2006 and received her angel wings in August 2006.

www.caringbridge.org/visit/krystie
Krystie has Infantile Tay-Sachs.   She had a cord blood transplant at the University of Minnesota in May 2007.

www.caringbridge.org/visit/mollygrace
Molly Grace has Infantile Tay-Sachs.  

www.caringbridge.org/visit/elisetenberge
Elise (or Big Elise as she is often referred to) has Infantile Tay-Sachs.  

www.caringbridge.org/visit/babyelise
Elise (or Baby Elise) has Infantile Tay-Sachs.  

www.caringbridge.org/visit/charleslee
Charles Lee has Infantile Tay-Sachs.  

www.caringbridge.org/visit/djmanning
Dylan had Infantile Tay-Sachs and received his angel wings in August 2006 

Websites of Tay-Sachs Children
www.connersway.com
Conner had Infantile Tay-Sachs and received his angel wings in November 2006

www.rachaeli.com
Rachaeli has Infantile Tay-Sachs.

www.djsfoundation.org
Dylan had Infantile Tay-Sachs and received his angel wings in August 2006

Tay-Sachs Related FOUNDATION Websites
www.mfrfoundation.org
The Mathew Forbes Romer Foundation emerged in 1998 -- inspired by the strength of a little boy with a fatal genetic disease -- to lead the fight for education, quality assurance, and research of children's genetic diseases of the brain

www.djsfoundation.org
We will turn our goal of raising $1.5 Million into a reality to conduct the research necessary to save our children! WE WILL SURVIVE...JUST BELIEVE!

www.lordfoundation.org
Mission is to decrease the incidence of chronic and complex childhood diseases.

www.michaelrossmemorialfoundation.com
The proceeds of the foundation go to the Bay Cliff Health Camp in Big Bay , Michigan . The camp is for handicapped children only, many with special care needs.

www.ntsad-ny.org
Dedicated to the treatment and prevention of Tay-Sachs and related diseases, and to provide information and support and referral services to individuals and families affected by these diseases.

Other Useful Tay-Sachs Links
www.geneticalliance.org
Genetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1000 conditions.

www.rarediseases.org
A unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them.

www.lysosomallearning.com
An on-line resource of lysosomal storage disorders.

 

2007 Cure Tay-Sachs Foundation. All Rights Reserved.
The Cure Tay-Sachs Foundation is a 501(c)(3) tax exempt foundation
Site-design by Ken Bihn. Developed by Michael Pusateri