The Cure Tay-Sachs Foundation (CTSF) is honored and humbled to have your support. Since our founding in June 2007 the CTSF has raised $1,965,466.91 (as of 12/31/2011) to support Tay-Sachs disease research!! We have spent $598,708 on research projects to date and have another $733,044 committed to projects in support of the Tay-Sachs Gene Therapy Consortium. We are currently working to raise $1.5 million to support the human clinical trials that we project to begin in October 2012 and last for two years. In 2011 we funded the needed toxicity studies, vector manufacturing, consulting fees and natural history studies required to meet FDA requirements for clinical trials.

The battle against this disease is difficult - but we are making real progress!! No child in the history of medicine has survived Tay-Sachs! It has a 100% fatality rate. We have to change the course of history to beat this disease - so that is what we will do. With your help - anything and everything is possible. We will not be outworked in our quest!!

We work hard to protect our donor's money by spending it wisely. We keep administrative expenses as low as possible (less then 6%) and the foundation has NO paid employees or consultants. Every dollar we spend is related to fundraising activity or research support!! A listing of the research we support can be found on the Research section of this website. Thank you so much for supporting us - we will find a CURE for Tay-Sachs disease. There is HOPE in your HELP!!.

This one of a kind Iceberg Award will be given to donors who contribute $1,000 or more in 2012. The stylish award is emblazened with the Cure Tay-Sachs Foundation logo and commemorates forever the year of your most generous donation! You will forever be reminded that there is HOPE in your HELP!!